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Arthritis At Home Episode 85 – Being your own advocate: the ACE National Survey on Arthritis Self-Advocacy

Being your own advocate: the ACE National Survey on Arthritis Self-Advocacy

People living with arthritis often must be their own best advocate. No one knows arthritis better than those who live with it every day.

In this episode of Arthritis at Home, Cheryl Koehn and Kelly Lendvoy discuss Arthritis Consumer Experts’ recently launched national survey on arthritis self-advocacy. Learn how your participation in this community-led research will help ACE better understand what effects self-advocacy has on a person’s quality of life at home, at work and on the healthcare they receive from their healthcare team. Survey findings will help ACE develop information tools and education programming to best support people in their journey with arthritis and role as self-advocate.

The ACE National Survey on Arthritis Self-Advocacy is open to people living with any form of arthritis and will take approximately 12 minutes to complete. Your answers will be anonymous, and responses will be pooled for analysis. Your identity will not be known and the survey results will remain in a secure database. The survey deadline is July 24, 2021.

Check out these helpful resources to learn more:

Take the survey:

To learn more about self advocacy, visit ACE’s Advocacy page:

Arthritis At Home